I've lost an entire generation of my family. desperately seeking medical info on my Grandfather, as well as his mother & father.
Myself, my mother and both of my daughters have been diagnosed with a rare genetic disorder. My grandchildren are showing signs as well.

I've lost an entire generation of my family. desperately seeking medical info on my Grandfather, as well as his mother & father.
Myself, my mother and both of my daughters have been diagnosed with a rare genetic disorder. My grandchildren are showing signs as well.